We are nearing the end of our stay at MGH. Caleb was in ICU over Christmas which meant we had to move away from our beloved Ellison 12 where I consider the whole tribe of nurses extended family. His tube which connected to the shunt was removed and we are test driving the idea that he will not undergo another surgery before we speed off to RHCI in Sandwich for the next phase.
Christmas day was a blast. A new friend of mine who owns a shop sent us the most hysterical assortment of gimmicks - right up my alley. We had Santa hats that sang and gyrated, monkey sling shots that made jungle sounds on impact, flashing necklaces and glasses; you name it- we had it! The boys and I laughed the day away, passed out cakes and cookies to fellow patients and Jan brought up Jade's famous chocolate oysters and the best caramel covered apples you will ever eat..The room was decorated to the hilt and we had beautiful hand made little Wellfeetian people snowflakes all over the windows. As I tucked Caleb in for the night he open his eyes, held his hand out for mine and whispered "thank you". I will always remember this day as one of the best..we were all together- bottom line.
The last dose of antibiotics is administered tomorrow- on the 31st Caleb will have another lumbar puncture and then we will see if we get the green light - perhaps midnight on New Years eve I will once again be in the kitchen making my celebratory homemade donuts to bring in the Year. See you at midnight!